The primary aim of the Alzheimers and Dementia Support Group is to provide support and information to you, the carer. We are an independent organisation run by group of people who at one time or another have been in a similar situation to you. We have a wealth of advice and experience to offer and recognise that it is not always easy to know where to go to for advice - you often 'don't know what you don't know'. Throughout the year, therefore, we invite a range of guest speakers to come along to our meetings. Over the last year we have heard from speakers offering advice on diverse subjects including diagnosis, clinical pathways, respite care facilities, legal issues (eg mental capacity, power of attorney) and dealing with behaviour problems. In addition, we can provide leaflets, newsletters and printed information on a range of subjects - some of these are available to print on our Information section of this website.
Whilst we are not afiliated to any national group, we do have close links with a number of other organisations who can offer practial help and further information when required. You can find further information about some of these on our Useful Links page. In addition, members of our Committee are actively involved in maintaining and improving services for both carers and the people they care for in the local area.
In addition, we offer several social events including our Summer Supper, Mince Pies and Carols at Christmas and New Year dinner. We know it can be difficult to find the time for yourself so, whilst we encourage carers to try and come along to some events on their own, we also welcome the loved ones you care for at our social evenings.
If you feel that you would benefit from the support we offer please come along to our next meeting, details of which can be found on our Diary Dates page. We look forward to seeing you soon.
Please see our Useful Links page for information on other websites that provide a wealth of information and support to carers. Scroll down for our Top Tips for Carers.
Top Tips for Carers
Definition of a carer: A carer is someone who looks after and supports a friend, relative or neighbour who could not manage without their help. This could be due to age, physical or mental illness or disability. It does not mean a professional care-worker or personal assistant who gets paid for their work. If you are a carer, you are not alone. Three in five peope in the UK will become carers at some point in their lives.Financial support for carers: If you care for someone, there is a range of financial benefits available to you and also to the person you care for. Do not be afraid to ask for help and claim what you are entitled to. (see Direct.gov website from Useful Links page)
Carer's Allowance: this is a taxable benefit for people who cannot work or have a low income because they are looking after someone who is ill or disabled. You may be able to get Carer's Allowance if you spend at least 35 hours a week in your caring role.
Carer's Assessments: If you provide care for someone aged 18 or over, your local council should carry out an assessment to see if you are entitled to any services that could make caring easier for you. A carer's assessment is about your needs as a carer - you may be eligible for help with housework or changes to the home.
Taking a break: As a carer, it is important that you make time for yourself. Having time off from caring can help with your own well-being and that is good for both you and the person you look after. Some local councils provide a range of services to give you a break. Age UK in Haywards Heath run a Saturday Club for people with dementia - please see details on the Useful Links section of this site.
Caring and your State Pension: The state pension is based on the number of years in which you have paid or are credited with National Insurance contributions. If you are unable to work because you are caring for someone, you can still get credited with NI contributions. If you receive Carer's Allowance, you will be credited automatically.
